Hi, I’m Rob and I’ve been living/coping/struggling with IBD for 16/17 years. Like most people who are afflicted with the disease, I have tried numerous types of medication, experienced periods of both remission and flare ups and ticked off many of the bad side effects of the disease.
I experienced a big flareup in 2014 and was given the option of surgery or Humira injections and I opted for the latter which proved to be somewhat of a miracle cure. I experienced another bad – perhaps worse – flareup in 2018 and after Humira didn’t work, I decided that I had had enough and it was time to elect for surgery to help improve my standard of life.
Aim of the Blog
I decided to start this website to chronicle my journey having a (partial) Proctocolectomy with Colostomy. The main reason for the site is to provide those considering having the surgery information on how the procedure went and how I recover. And as a runner I will be documenting how I deal with getting back into running with a colostomy bag.
I’m sure there are plenty of others out there that have written similar blogs but there’s no harm in having more information available.
Update: November 2019
The aim of the blog was, and still remains, to chronicle my journey with a new bum. Over the 10 months that I’ve had the new bum it’s been a bumpy ride and things haven’t quite gone to plan. Early after the surgery things appeared to be heading in the right direction and I started to build up my fitness again at first by swimming then by getting back into running. I managed a period of running which allowed me to build back up to half marathon distance and whilst I wasn’t quick, my 5k was gradually improving.
Then things started to go wrong and wounds associated with the Ken Butt weren’t healing. I stopped running in case that was contributing and eventually I required more surgery to reopen the wounds to allow them to heal (assisted by a VAC dressing). As of November 2019 I’m still having daily dressings and not running but it does appear that I should be able to start again in early 2020.