If I rewind back to early 2018, I was embarking on a time of running to the toilets, feeling lethargic, feeling like I was forever having a fever, this was Crohn’s Disease reminding me that it was still there and trying to treat the flare up with the usual treatments of steroids and Humira injections would prove to be futile.
Read moreWhen to Run, When to Run?
Post-EUA (Exploration Under Anaesthetic) things have been generally good. Initially there was a lot of leakage (both blood and exudate) from the newly opened wound so much so that I had to invest in some sexy incontinence pants. Thankfully that seemed to reduce quite quickly thus reducing the need for the pants.
Read moreMe, Felted
Behold, the felt version of me! Yes I have been immortalised in felt complete with my bag for life.
Read moreMeet Mr Parastomal Hernia
Shortly after my surgery I started to notice a lump above my stoma. At the time I wasn’t sure whether the lump was associated with post-surgery swelling and had hoped that over time would reduce with time. The lump meant that the outline of the colostomy bag was visible, particularly when not empty.
Read moreThe Joys of Having a Pilonidal Sinus
After 14 weeks, I’ve been experiencing an ongoing issue with my AP Resection, and in particular a pilonidal sinus. At this moment how long this is going to take to heal or if it ever will heal. Here’s what’s happened so far and what could be happening right now.
Read moreFirst Short Break with a Stoma
The Easter weekend saw my first multi-day trip away since surgery and being away from home would mean being away from my main ostomy supplies. I would need to calculate how many supplies I would need.
Read more10 Things I’ve Learned From Living With A Stoma
It’s been over 3 months since I had a New Bum installed and in that short period I’ve learned quite a few things. Here are 10 things I’ve learned from living with a stoma.
Read moreHow My Running Club Helped Me Battle Crohn’s
It goes without saying that during times when you are struggling with illness your family and co-workers are there to help support you but I’ve also found that the running community that I’m a part of has also proved to be a great benefit during the times when I’ve been struggling with Crohn’s, the lead up to surgery and during recovery.
The club which I joined in October 2016 (Parc Bryn Bach Running Club) has become an integral part of my life and I’ve made many good friends in the time I’ve been a member and in a way I’ve got to know even more members through having Crohn’s.
Read moreA Stoma Haiku
Awoken by poop leaking from my bag and not being able to sleep because the replacement bag as quickly filling up with poop and wind I was inspired to write my first ever haiku.
Read moreBlinging Out My New Bum
Anyone that knows me knows that whenever I get something new I immediately look at all the accessories I can buy and inevitably will end up purchasing one or more things. This also applies to My New Bum!
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