1:30am and the Butt Machine is shouting at me. The alarm is intermittent and whilst not terribly loud it’s tone is annoying. I’m still half asleep as the alarm continues to shout but the sound doesn’t register but when it did I feared that there was a leak in the vacuum. Thankfully the charging cable hadn’t been fitted correctly so the battery was running low and there was no leak. But, at the same time I realised that my colostomy bag was full.
Read moreThe Ongoing Saga of the Unhealed Perineal Wound
After 8 months my issues with the Ken Butt have continued and it doesn’t look like they will be resolving themselves without intervention.
Read moreKen Butt Update
For over 7 months the Ken Butt has been a right pain in the butt. It’s stubbornly not healing and may appear to be getting slightly worse with the wounds tunnelling inside.
Read moreSix Months with a Stoma
Six months have flown by. I’ve learned a lot in that time but feel as though there’s so much more to learn. My journey with a stoma has been an interesting one – it’s been rewarding, a huge learning curve and I feel as though I’ve got a long way to go before being an ostomate-master, if I ever will become one!
Read more20 Weeks With A Stoma
20 weeks? I can’t believe that it’s been 20 weeks since the installation of My New Bum. Apart from the ongoing Ken Butt issues and the parastomal hernia, everything has gone really well and I’m still glad that I had the operation.
Read moreMeet Mr Parastomal Hernia
Shortly after my surgery I started to notice a lump above my stoma. At the time I wasn’t sure whether the lump was associated with post-surgery swelling and had hoped that over time would reduce with time. The lump meant that the outline of the colostomy bag was visible, particularly when not empty.
Read more17 Weeks With A Stoma
It’s been over 17 weeks since my surgery and it’s been a while since I posted an update. Here’s how I’ve been getting on.
Read moreThe Joys of Having a Pilonidal Sinus
After 14 weeks, I’ve been experiencing an ongoing issue with my AP Resection, and in particular a pilonidal sinus. At this moment how long this is going to take to heal or if it ever will heal. Here’s what’s happened so far and what could be happening right now.
Read moreEleven Weeks With A Stoma
It’s almost three months since surgery and it’s time for a second follow up appointment. I’ve been eagerly awaiting this appointment due to the Ken Butt taking so long to heal. Whilst the nurses I see on a daily basis are doing a fantastic job, a specialist really needed to see them to check everything was ok.
Read moreFollow Up Appointment With Gastroenterologist
Today I had a post-surgery follow up consultation with my gastroenterologist and the aim was to review how I’d been getting on with the new bum and to review a blood test after restarting Azathioprine.
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