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My journey in having a Colostomy

My New Bum

Having a VAC Installed

September 23, 2019 7:24 pmNovember 23, 2020By Robert GaleIn Hospital0 Comments154 Views

With a perineum wound that was refusing to heal, was frequently infected and had joined up to a pilonidal surgery, a different solution was required in the form of a vacuum-assisted closure aka a VAC aka negative-pressure wound therapy.

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Ken Butt v2

September 20, 2019 12:37 pmSeptember 20, 2019By Robert GaleIn Hospital0 Comments158 Views

Over 8 months after having an abdominoperineal resection as part of the proctosigmoidectomy, I’m back having the entire thing reopened in a bid to try and resolve the wound healing issues.

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The Ongoing Saga of the Unhealed Perineal Wound

September 17, 2019 4:07 pmSeptember 17, 2019By Robert GaleIn Weekly Update3 Comments170 Views

After 8 months my issues with the Ken Butt have continued and it doesn’t look like they will be resolving themselves without intervention.

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Stoma 66

September 10, 2019 3:53 pmSeptember 10, 2019By Robert GaleIn Fitness0 Comments161 Views

66 days for Ostomates to walk, run, and dance their way to 66,000km. That is the new challenge launched by Colostomy UK to help promote fitness for those that have undergone stoma surgery.

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Ken Butt Update

September 9, 2019 4:43 pmSeptember 9, 2019By Robert GaleIn Weekly Update0 Comments169 Views

For over 7 months the Ken Butt has been a right pain in the butt. It’s stubbornly not healing and may appear to be getting slightly worse with the wounds tunnelling inside.

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Do I Regret Having Surgery?

September 5, 2019 6:13 pmSeptember 5, 2019By Robert GaleIn Musings0 Comments159 Views

This is a question I’ve asked myself many times and I find it difficult to answer. The ultimate answer always tends to be no but I’m forever questioning whether that’s the right answer.

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The Psychological Effects of Having a Proctosigmoidectomy

August 13, 2019 8:19 pmAugust 13, 2019By Robert GaleIn Musings4 Comments207 Views

If I rewind back to early 2018, I was embarking on a time of running to the toilets, feeling lethargic, feeling like I was forever having a fever, this was Crohn’s Disease reminding me that it was still there and trying to treat the flare up with the usual treatments of steroids and Humira injections would prove to be futile.

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Is 2019 A Write Off?

July 29, 2019 6:14 pmJuly 29, 2019By Robert GaleIn Fitness0 Comments182 Views

First Crohn’s stopped me from running, and then a stoma gave me a new lease of life. Now, the ongoing issues with the Ken Butt have scuppered things again.

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When to Run, When to Run?

July 27, 2019 7:11 pmJuly 27, 2019By Robert GaleIn Fitness, Musings0 Comments159 Views

Post-EUA (Exploration Under Anaesthetic) things have been generally good. Initially there was a lot of leakage (both blood and exudate) from the newly opened wound so much so that I had to invest in some sexy incontinence pants. Thankfully that seemed to reduce quite quickly thus reducing the need for the pants.

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Time For Some More Specialist Wound Advice

July 22, 2019 1:45 pmJuly 22, 2019By Robert GaleIn Hospital0 Comments156 Views

Post-surgery my specialist had recommended seeing someone in his team for more specialised advice on how to care for my wounds.

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